Bryce's Progress
Bryce's Progress
Bryce's day to day Update (most recent first)
| December 2000 - Alot different from last year, we have had almost a normal exsistance as you could have with 2 children with no hospital stays just appointments every now and then It's been a great year. He is still small and only weighing about 9kg and is 75cm tall but he has the fight he needs to get through life. |
| August 2000 - His first Holiday and a 7 hour trip to Darwin then 5 more plane trips to Cairns, Townsville & Brisbane then home with 3 weeks, did very well and was really enjoying taking off and landing. That's our boy now they are both trained in taking flights. |
| July 2000 - Chicken Pox - he seems really well and if it wasn't for the spots you would never know he was sick which just like his sister was when she had them. |
| July 2000 - Walking at long last |
| Early February 2000 - started crawling and weighs 6075g (13lb 6oz) |
| 14/12/99 - Off oxygen at last and all dr's are happy with his progress |
| 11/11/99 - 4265g (9lb 6 1/2oz) |
| 5/11/99 - Still coughing, sneezing and wheezing and his chest was sounding a bit congested too. Peter rang the Dr the other day but they didn't sound too worried and told us to come in if his resp. rate was 60/min or over or if his colour was a bit off. |
| 1/11/99 - Opthomologist appt. today. All is going well with his eyes. one less thing to worry about |
| 29/10/99 - He's coughing again! |
| 28/10/99 - Released today he's on nasal cannula on 1/8th L which is good but his weight is only 3520g. |
| 20/10/99 - Geneticist come in to check on him as he missed the appt. we were supposed to take him too. They were suspecting Osteogenesis Imperfecto in relation to the broken femur he had many months ago. But since then have changed it just to Osteopenia just due to his prematurity. His chest x-rays showed some improvement today. |
| 15-18/10/99 - The worst days put on Gentamyacin as well as Penicillin just to be on the safe side, they don't want him getting any secondary infections on top of this. |
| 14/10/99 - Got worse over night and sent by NETS (Newborn Emergency Transport Service) Ambulance to the ICU at the hospital we couldn't get admitted to yesterday. Was only in the ICU for about 5 hours then sent to the paediatric ward, but he still doesn't look very well. He has Bronchiolitis RSV pos. complicated by Bronchopneumonia, partial collapsed lung. Needs lots of oxygen at the moment up to 55%. |
| 13/10/99 - As we suspected back to hospital but the public one has no beds so we're off to a private hosp. where the Resp. Dr also goes. weight 3700g |
| 12/10/99 - Temperature still high so off to the GP's then the Paed, our appointment with the Resporitory Dr is tomorrow anyway so they will wait till then. |
| 11/10/99 - Bryce has a mild fever 38.3C and is coughing yet again. |
| 1/10/99 - Given the all OK from Paediatrition not that that has helped in the past doesn't want to see him till mid-Dec. Development seems OK though. |
| 20/9/99 - Endocrinologist & Barium X-Ray It seems everyone wants to see him but they aren't coming forth with information and nothing new to tell us. |
| 17/9/99 - Discharged yet again but headed straight to the Resporitory Dr. hopefully will get some answers. They put his O2 up to 1/4 L. |
| 14/9/99 - Back in hospital because of the apnea spells will coughing. |
| 11/9/99 - He's having blue episodes again due to coughing and crying just can't catch his breath. |
| 9/9/99 - Home again but on oxygen via nasal cannula 1/8 L- weight 3174g |
| 30/8/99 - Well here we go he's back in hospital with bronchiolitis again |
| 27/8/99 - weight is 2935g |
| 23/8/99 - Discharged from hospital |
| 19/8/99 - Admitted to hospital with Brochiolitis and given oxygen therapy (RSV neg) |
| 16/8/99 - Weighed in at 2830kg (6lb 4oz) now 22 weeks old and looks like a newborn! |
| 6/8/99 - Released from Hospital, bone healing well |
| 31/7/99 - Admitted to hospital with broken femur possibly due to Ricketts/Osteopenia. Legs put in Gallows traction for 7 days |
| 19/7/99 - 2050g |
| 14/7/99 - well the excitement of coming home must be too much for the little man he lost 10g - 1945g but he is home at last. And we had a sleepless night. |
| 13/7/99 - plodding along nicely and 1955g |
| 10/7/99 - 1890g |
| 8/7/99 - All going well and 1855g |
| 6/7/99 - Transfered to a Private Hospital closer to home after his opthomologist appointment. |
| 4/7/99 - 1835g |
| 2/7/99 - 1805g and moved to the lowest special care bay |
| 1/7/99 - moved to a lower level bay - 1768g |
| 29/6/99 - 15 wks old weight 1762g and his due date. |
| 27/6/99 - weight 1742g (3lb 131/2oz) and after a discussion with a nurse on the accuracy of the oximeter in Bryce's isolette it was calibrated and the true level 22% oxygen not 24 to 26% as it was originally showing. Very glad I said something!!! |
| 26/6/99 - His first immunisation |
| 25/6/99 - weight 1680g had a low haemo test 7.1 so he had a blood transfusion today |
| 23/6/99 - 1589g (3lb 8oz) Oxygen Sats still seem to be up and down. |
| 21/6/99 - 1519g yippee a gain in weight again. |
| 19/6/99 - weight 1445g loosing weight because of diuretics. Saturations seem to be getting worse? |
| 17/6/99 - 1450g feeds are 3 hourly 33mls Oxygen Sats good at 22% O2 |
| 15/6/99 - weight 1487g had his first big bath today. Started Diuretics |
| 14/6/99 - 3 hourly feeds now 30ml - blood tests today showed hemaglobin at 10 which is border line anemic having folic acid and iron. |
| 13/6/99 - weight 1146g |
| 11/6/99 - 1412g put onto 2 hourly feeds of 20ml |
| 9/6/99 - 1350g oxygen and saturations still the same |
| 7/6/99 - 1330g 24% cot oxygen with saturations at 95 - 96% |
| 5/6/99 - weight 1308g and on 25% to 26% cot oxygen |
| 3/6/99 - from midday they are trying to keep him off the driver and have added some cot oxygen to help him out, so far so good. He has had very few desaturations. |
| 2/6/99 - weight 1240g and off the driver 3 hours per shift |
| 1/6/99 - 11 weeks old today now off the driver for 1 hour per shift |
| 31/5/99 - 1198g off driver for 2 hours |
| 30/5/99 - weight 1179g and off driver for an hour in the afternoon |
| 29/5/99 - weight 1161g He's been busy adjusting to 2 hourly feeds instead of hourly. Also being off the driver for short periods to see how he copes, he was doing very well off it today. |
| 28/5/99 - out of intensive care last night actually, just plodding along happily |
| 27/5/99 - weight 1160g very well today even talk of him getting out of intensive care over the next week. |
| 25/5/99 - weight 1100g on NCPAP driver now which means no invasive tubes down the nose anymore and is on air most of the time now. |
| 23/5/99 - 1078g |
| 21/5/99 - weight 1053g |
| 19/5/99 - Yippee! he made the grand ole weight of 1015g today |
| 18/5/99 - A tempreture over night but went as fast as it came, blood and urine tests being done to be sure, blood tests returned so far have been negative. |
| 17/5/99 - weight 999g. 1g no one could be believe it! Doing well very few desaturatons and while having my cuddle he was on air only, what a clever little chap. |
| 14/5/99 - Bryce having problems breathing when I got to the hospital, I knew something was wrong and especially so when the respirator monitor flat lined and yet I could see him trying to breath. When a nurse came by I told her what was happening and that he was really struggling to breath properly, they swung into action and changed his tube which was blocked again but so was his other nostril that's why he was having problems. Any way as soon as they suctioned his airways he was back to normal almost just a little distressed but he calmed down after a few minutes giving him a cuddle with my hand. |
| 13/5/99 - weight today 950g, thinking of taking him off the short tube for oxygen in a few days, we'll wait and see. He was Upset today too many people about with TV cameras again, not filming him this time, hmmm maybe that's why's he's upset? |
| 11/5/99 - weight 925g back to 6ml of milk an hour as not tolerating 7ml very well |
| 9/5/99 - weight 915g |
| 8/5/99 - on 7ml milk an hour, having a few desaturations today so higher oxygen % given. |
| 7/5/99 - On Channel 7 and ABC news, our little star and we taped it of course |
| 6/5/99 - weight 885g |
| 5/5/99 - 24% - 25% oxygen with saturation level at 96% most of the time |
| 4/5/99 - weight 900g on 6ml milk an hour |
| 3/5/99 - less oxygen desaturations and back on 5ml milk an hour, has a streph infection but is clearing up now. |
| 2/5/99 - weight 840g, blood test clear 2ml of milk every 2 hours |
| 30/4/99 - weight 880g, noticed lots of oxygen desaturations today when visiting and sure enough by the afternoon they had him on antibiotics, tests being done to see what it is. |
| 28/4/99 - weight 835g |
| 26/4/99 - weight 795g |
| 24/4/99 - weight 740g |
| 22/4/99 - weight 720g |
| 20/4/99 - weight 661g |
| 19/4/99 - While we were there today they took him off the ventilator and are giving him oxygen only with a short tube. Told not to get too excited as it can take a few attempts to get them off the ventilator. |
| 15/4/99 - weight 586g |
| 13/4/99 - weight 555g |
| 11/4/99 - stopped steriods today, looks all puffy cheeked because of them. |
| 9/4/99 - weight 536g |
| 5/4/99 - first cuddle, he's 3 weeks old tomorrow |
| 16/3/99 - born 8:11pm by emergency caeserian |
Bryce's
day to day update